Survivorship Care Plan

DR Tess Nowell

DR TESS NOWELL, AUTHOR

This is a very exciting moment for me and, I hope, for many. The care plan which I have been working to develop over the past 3 years has finally reached a stage where we can share it. The evidence is quite sparse for how best to manage long term effects and risks associated with a diagnosis of Hodgkin Lymphoma and subsequent treatment. Therefore, the strategy has been to develop sensible recommendations. These are designed to help you have conversations with your doctors and health care professionals about planning your care. As Hodgkin Lymphoma is quite rare, many of these people may not know much about the relevant issues.
In putting this together, I have taken account of existing guidelines from the USA, UK and Europe and have been fortunate to have advice from the Oncology Department in Oxford (UK), where I live and work (and receive my medical care). There is a lot of work ongoing in the UK and internationally to try to standardize follow up for survivors of cancer, based on evidence that is gradually emerging over the decades. This care plan may therefore need to be updated from time to time.

This document is for you to download, add your details, and then share with your doctors. It is to inform both you and them of the best information that we have about caring for you into the future, to enable those conversations, and to give some weight to them such that even the less well-informed healthcare worker may be able to see why you need this plan in place. I truly hope that it will succeed helping to improve the quality of life for many people, by improving long-term follow-up care and relief of late effects, in line with our organization’s objectives.

Tess Nowell, MD

Survivorship Plan Appendix

This care plan has been developed taking account of existing guidelines from the USA, UK and Europe and with advice from the Oncology Department in Oxford (UK). The evidence is quite sparse for how best to manage long term effects and risks associated with a diagnosis of Hodgkin Lymphoma and subsequent treatment. Therefore, the strategy has been to develop sensible recommendations. These are designed to help you have conversations with your doctors and health care professionals about planning your care. As Hodgkin Lymphoma is quite rare, many of these people may not know much about the relevant issues.
This document is for you to download, add your details, and then share with your doctors. It is to inform both you and them of the best information that we have about caring for you into the future, to enable those conversations, and to give some weight to them such that even the less well-informed healthcare worker may be able to see why you need this plan in place. I truly hope that it will succeed helping to improve the quality of life for many people, by improving long-term follow-up care and relief of late effects, in line with our organization’s objectives.

Tess Nowell, MD
January 2021

Our hope is to support our fellow survivors, and their caregivers, by letting them know that they are not alone and providing information and tools to achieve optimal health and healing.